conillio schreef op 12 april 2019 13:39:
Hoe was het ook al weer:Let op: de 2 overstappers zijn preventief gebruikers die Cinryze hebben ingeruild voor Ruconest. Ofwel de grootverbruikers!
Danielle Acordagoitia My very first questions when I started a plasma based drug were about risk factors. I have always felt good using them, but that number is way more than I thought it would be! I am so grateful for donations!
Kaleigh Elizabeth Ryané Shriver I am going off Cinryze. My last 2 prophylactic doses I've used Ruconest instead of Cinryze and not had any breakthrough swells. And not sick.
Jessica Hardwick I had concerns as well. For me, Kalbitor is the only medication that can tame the beast, and it is also not plasma based.
Megan Banning The numbers do tell a story for sure! I’m so glad I switched Cinryze to Ruconest
Ruconest does not work for everyone. However seeing these numbers is huge! I for one, will never use a plasma based drug. It just scares me to go with out, and all the other risk factors that come from using a blood based medicine. However, some people are left with out any other option, and I believe education is huge! So if you are on any of these meds, it is important to educate yourself and to know what it takes to manufacture them!
Wellicht doet dit nog pijn bij Shire.Je mag best enthousiast doen als je product als beter wordt ervaren en als je dan een beetje erg trots bent moet dat kunnen.